Caregiving IS Personal

personal caregiving

From Your Teenager…

“Don’t take it so personally.” or “It’s not personal.”

How many times have you heard that? Or how many times have you said it to someone else trying to make them feel better?

If you’ve ever parented a teenager, you’ve probably heard it more times than you can count and maybe even said it reassuringly to yourself. I know I did.

Your cherub of a child grows into a rebellious and rude teenager. They hurl non-verbal daggers in the form of eye rolls and stomped feet. They are outwardly sassy or conversely won’t talk to you if your hair was on fire. All through this long phase you’re supposed to remember it’s not personal!

…To Your Parent.

I’ve also had to remind myself over and over that my mother’s nasty remarks to me “weren’t personal” either as her dementia advanced.

Almost all people who journey through dementia/Alzheimer’s experience adverse personality changes: increased frustration, accusatory remarks, bewilderment, etc. And most likely you as the dutiful son or daughter, are the recipients of their declining demeanor.

“Take me back home now!” My confused and irritated mother demanded of me often after she needed to be relocated into a secure facility. This was after several delusional episodes in which she thought she lived back in the house I grew up in.

“Where are you going? Don’t leave me here!” Mom also yelled when I took her back after being at my house for Christmas Day.

“You never come to see me!” upon my second visit of the day.

Sound familiar?

Emotional Hijacking

The idea that you haven’t done enough or aren’t doing the right things in behalf of your parent plays havoc with your emotions. While you’re in the thick of making difficult decisions and then living the fall-out, snippy judgmental remarks from Mom or Dad that appear to challenge your integrity, are painful. I know; I’ve been there and many friends of mine have as well.

Caring for someone else regardless of the situation is a very personal undertaking. Whether it’s a newborn or an adult, it’s emotional, physical and yes personal. In both age extremes, someone is dependent on you to make good decisions to keep them safe and comfortable.

The infant cries to communicate any need. But your adult parent uses words, sometimes harsh to convey theirs. However, their primary needs aren’t physical per se but emotional insecurity. And therein lies the problem. Stressors such as relocation as well as the neurological decline that accompanies dementia/Alzheimer’s trigger anxieties manifested in negative behaviors and accusatory remarks.

My advice to especially family caregivers: Any decision made out of love in behalf of someone regardless of the consequences, is the right decision at the time. It may have to be revisited, tweaked, or outright gutted, but it isn’t wrong.

Your parent snipping at you for not visiting, not taking them ‘home’, leaving etc. is personal! But these words aren’t coming from the loving parent you knew who raised you. They’re coming from a stranger compromised by a disease over which they and you have no control.

Take some solace in that fact. It’s the dementia talking for them, so to speak, as their words are manifestations of their fears and insecurities.

Caregiving is very personal.

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Elaine C.Pereira

About Elaine C.Pereira

Elaine retired in June 2010 as a school Occupational Therapist where she worked with special needs children. She lives in southeastern Michigan with her husband, Joe. Between them, they have five children — Joe has three sons and Elaine has twin daughters-and soon-to-be five grandchildren. Elaine has a Bachelor’s Degree and Master’s Degree in Occupational Therapy from Wayne State University. Elaine is the author of I Will Never Forget and she was inspired to tell her mother’s incredible story in part to help other caregivers coping with memory loss issues in their loved ones. I Will Never Forget

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